Oregon Native
Member
- Joined
- Jan 21, 2010
- Messages
- 22
- Reason
- PALS
- Diagnosis
- 03/2010
- Country
- US
- State
- Oregon
- City
- The Middle Part:)
I first wanted to say hello to all the amazing people of this forum, this is my first post after stopping by here quite often. It started in my hands, pain first, then muscle loss, now they look quite thin with no muscle tone, during this time I noticed fascillations in arms, torso, and thighs. Now my arms are cramping and getting thinner with more loss of muscletone. Everything seems to be happening bilaterally(at the same time, both sides) The forearm cramping is getting more severe. Now my calves feel tight frequently, and thighs are getting occasional cramps. My mri came back fine, all my blood and urine tests came back fine. The emg showed this to be happening in the lower motor neurons only. My neuro thinks this is probably als, just waiting till I can get in for spinal tap, before he makes final diagnosis. I would love to hear from others where their symptoms started either like mine or with lower motor neuron only diagnosis and how fast does this usually progress, I'm 39 and in fog, still digesting all of this. The people on this forum have given me inspiration, I look forward to hearing from all