Old 01-17-2010, 03:50 AM #1 (permalink)
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Default What do you think?

Sorry I have to post another question.
I'm still very concerened of the possibility of ALS after seeying atrophy in my first dorsal webspace (right dominant hand)

I'm twitching widespread for almost 2 years now and went to two neurologists
The first one is specialist in MND. His assistent did an EMG at that time - I was only twitching 2.5 weeks then (Feb '0 DX bfs because only fascics were seen.

The other is also a specialist in mnd in a large hospital, he didn't do an EMG, but also saud it was BFS after clincial exam (I've been to him in November 09)

After the last visit I was confident I didn't have ALS until a couple of weeks ago why holding a glass I noticed a big dent between my thumb and index finger (space). This in my dominant hand (and real visible difference with my left)

Do you think this specialist could have made a mistake? It's been 2 years, I see atrophy in the right hand but don't notice real weakness (can open jars, turn keys)
I guess if this is really atrophy it must be ALS, right? I also twitch tremendously.
Also the twitches started in my eyes, followed by 24/7 legs and week later overall. Is is than normal that the hand goes first? Can it take this long?
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Old 01-17-2010, 08:19 AM #2 (permalink)
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Default Re: What do you think?

Alexandre,

Sometimes it seems like you've not paid attention to the previous responses on your other posts, or, used the "search" function to read other peoples questions, either.

After reading your last thread, (the "Timeframe to DX" one) I took the time to look up and post links not only to neurological exams, showing what the doctors look for, but along with that, all kinds of links showing just a fraction of how many conditions and diseases there are which can cause muscle problems. I didn't mind doing it, as it was in hopes of giving you a broader perspective. But then, you start this thread, asking... I see atrophy in the right hand but don't notice real weakness (can open jars, turn keys) I guess if this is really atrophy it must be ALS, right?

Really? You're asking that now? "Must" be? Weakness is the #1 hallmark/characteristic/aspect/ feature/element of ALS.

Why don't you re-read the requirements for an ALS diagnosis (at top of forum page) I'm assuming you must have noticed it.

I do not want to come across as curt or unfeeling, but its hard for me to see you seemingly ignore what has been good solid advise and information, in favor of a preconceived fear you harbor.

Good luck to you. I hope you're able to find peace, and enjoy the life you've got before you.
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Old 01-17-2010, 09:45 AM #3 (permalink)
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Default Re: What do you think?

I've never had a problem with being curt or unfeeling when I feel it's needed . . . and this is definitely one of those times.

Alexandre, maybe there is a language problem here and you're just simply not understanding a thing we say . . . although I'm going to assume that the neuro's you're seeing speak French (you know, the ones who keep telling you THAT YOU DO NOT HAVE ALS AND THAT YOU HAVE BFS), so maybe I'm wrong. Despite that, I'd like you to go get your English-to-French translation book and look these words up for me:

"IF YOU HAVE ATROPHY (and I seriously doubt that you do) IN THE ABSENCE OF WEAKNESS, THAT MEANS THE ATROPHY YOU HAVE (or think you have), IS NOT DUE TO ALS!"

Now that you've looked-up those words, please do your best to LISTEN TO THEM and UNDERSTAND THEM. Then go enjoy your life and put an end to this #!@&ing non-sense.
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