Dirk
Member
- Joined
- Dec 1, 2009
- Messages
- 10
- Reason
- Learn about ALS
- Country
- NL
- State
- Noord-Holland
- City
- Amsterdam
Hi everyone,
I would like to present my case to you as I am experiencing extreme panic and anxiety. And I am wondering if an infection can be the cause of ALS/MND or if other infections can mimic the symptoms..?
Here's my case:
Last february I started a new job in an very dirty building. The airconditioning wasn't cleaned for over twelve years while it should have been done every year. One person even had an air cleaning tool near her desk(crazy situation). Unluckyly I had cut myself that morning while going to work. I left the wound untreated(dummy) and went working. The second day I started to feel sick. Coughing, red face etc.
After three days I really couldn't stay inside that building anymore. It was an eight story building of wich only ours was in use. Many people were complaining of coughing, red faces, unable to think clearly etc. And to make matters worse, there was a story of a guy who had died from ALS/MND..very sad..This guy had been working and sleeping for quite some while in this building. Then he started to have trouble walking and was tired. Four months later he had died...very quickly in for ALS/MND in my point of view. Ofcourse I don't know any more specifics on his illness and maybe he had been sick much longer.
I have quit the job after a week because I couldn't stay in this building any longer. Then came a period where I feld extremely tired(six weeks, slept up to 16 hours) and I developed a twitch in my right hand(Thumb). I didn't pay a lot of attention to it. But it was persistent and slowly spread to other places. Then I started reading about ALS and got really scared. I went to a neurologist. They did send me home after some tests but no EMG. They told me I should return if the situation got worse.
Then came a period where I had to use Depakine(valproaat for an other disorder), and this covered my twitches, on hinside. In October I stopped using Depakine and there were the twiches and fasculations all over my body. Sometimes when I lie in bed my leggs kick due to the havy fascs. Also shoulders shake heavily sometimes. I also am really tired the last three weeks(sleeping up to 16 hours a day again)
It has been ten months since I have left this nasty building and I am convinced I have been infected in this building, most likely because of the wound on my hand. Other people exept the one(who died) are still doing o.k. The firm has only recently left this building and moved to a clean one.
I am freaking out at the moment. I am twitching all day and since a week I am experiencing a heavy feeling in my legs, especially my right leg. Sometimes it hurts a bit in my calves(muscle ache) am twitching in all extremeties including, back, sides and shoulders. My G.P. has send me back to the neurologist. As I have red a lot about ALS/MND and I am really scared at this point..But still I am convinced that what I have is due to an infection in that building.
My G.P. has done a quite extensive bloodwork. But until now hasn't found the real cause. I have an appointement in two weeks at the neuro where they will probably make an EMG.. This is a long time for me because my leggs are feeling more heavy every day. Also the story of the man who had died so quick in this building really make me scared..
If anyone has any suggestions on the part of the theory of infection, or what should be done next, I would really appriciate it. Is there anything unusual that could be seen in a blood screening? Should I be on antibiotics or other medications maybe..? What could be the root of it all? How likely is this ALS/MND?
Good luck to you all,
best wishes and prayers
I would like to present my case to you as I am experiencing extreme panic and anxiety. And I am wondering if an infection can be the cause of ALS/MND or if other infections can mimic the symptoms..?
Here's my case:
Last february I started a new job in an very dirty building. The airconditioning wasn't cleaned for over twelve years while it should have been done every year. One person even had an air cleaning tool near her desk(crazy situation). Unluckyly I had cut myself that morning while going to work. I left the wound untreated(dummy) and went working. The second day I started to feel sick. Coughing, red face etc.
After three days I really couldn't stay inside that building anymore. It was an eight story building of wich only ours was in use. Many people were complaining of coughing, red faces, unable to think clearly etc. And to make matters worse, there was a story of a guy who had died from ALS/MND..very sad..This guy had been working and sleeping for quite some while in this building. Then he started to have trouble walking and was tired. Four months later he had died...very quickly in for ALS/MND in my point of view. Ofcourse I don't know any more specifics on his illness and maybe he had been sick much longer.
I have quit the job after a week because I couldn't stay in this building any longer. Then came a period where I feld extremely tired(six weeks, slept up to 16 hours) and I developed a twitch in my right hand(Thumb). I didn't pay a lot of attention to it. But it was persistent and slowly spread to other places. Then I started reading about ALS and got really scared. I went to a neurologist. They did send me home after some tests but no EMG. They told me I should return if the situation got worse.
Then came a period where I had to use Depakine(valproaat for an other disorder), and this covered my twitches, on hinside. In October I stopped using Depakine and there were the twiches and fasculations all over my body. Sometimes when I lie in bed my leggs kick due to the havy fascs. Also shoulders shake heavily sometimes. I also am really tired the last three weeks(sleeping up to 16 hours a day again)
It has been ten months since I have left this nasty building and I am convinced I have been infected in this building, most likely because of the wound on my hand. Other people exept the one(who died) are still doing o.k. The firm has only recently left this building and moved to a clean one.
I am freaking out at the moment. I am twitching all day and since a week I am experiencing a heavy feeling in my legs, especially my right leg. Sometimes it hurts a bit in my calves(muscle ache) am twitching in all extremeties including, back, sides and shoulders. My G.P. has send me back to the neurologist. As I have red a lot about ALS/MND and I am really scared at this point..But still I am convinced that what I have is due to an infection in that building.
My G.P. has done a quite extensive bloodwork. But until now hasn't found the real cause. I have an appointement in two weeks at the neuro where they will probably make an EMG.. This is a long time for me because my leggs are feeling more heavy every day. Also the story of the man who had died so quick in this building really make me scared..
If anyone has any suggestions on the part of the theory of infection, or what should be done next, I would really appriciate it. Is there anything unusual that could be seen in a blood screening? Should I be on antibiotics or other medications maybe..? What could be the root of it all? How likely is this ALS/MND?
Good luck to you all,
best wishes and prayers