Update.

[glenn gavanaugh]

Haven't posted in over a month. Just wanted to say, finally saw the neuro-muscular specialist, he conducted a nerve conduction and emg and clinical stuff...and it turns out I do not have MND.

I've had atrophy, weakness, fascic's, spasticity, over-active reflexes, swallowing difficulties, etc. But the neuro said absolutely NOT MND.
and to be honest, I gave up caring about a month ago anyway, so.
So if it's any consolation to anyone out there worrying about this disease, I was in the same boat, and it turns out I'm good

He did agree with the previous doctor that it's abnormal that I'm clearly weaker on my right side - so he told me to get an ultrasound, muscle biopsy and x-ray on that arm/leg, and go from there. But it's NOT mnd.

I'm going to tell everyone I know (well, I already have, actually...) about how horrible this disease is. I'm praying that something comes along to slow or solve this monster. With all my heart and soul.

 

[BethU]

That's good news. Thanks for letting us know.

 

[indigosd]

SOOOOO happy for your good news and that you will be a strong advocate!

 

[lydia]

Wow, that is great. Did he have any ideas what it might be, if not MND?

 

[Zaphoon]

Glen,

Congratulations on having ALS scratched from the list of possibilities!

Zaphoon

 

[glenn gavanaugh]

Thanks all.

Yes, I'm going to tell everyone I come across about this disease - I was scared enough wondering if I had it, I can't imagine those who actually sufferer - such a strong bunch of people- this forum is a testament to that.

And as far as what my problem could be - he didn't really give any clues - I was so caught up in the fact that he said that it's absolutely not MND. So. I'm still going to search, of course.

God Bless. Thanks so much for all the responses you guys have given me throughout the months. This forum is such a blessing.

 

[GlenBrittle]

Glen,

Congratulations on having ALS scratched from the list of possibilities!

Zaphoon

Ooo ... I am a Glen too. Can I get mine scratched ?

 

[joelc]

CONGRATULATIONS! Wonderful news!

 

[paleshia]

yippee! go spread the word

 

[Al]

Great news Glen. Thanks for letting us know.

AL

 

[glenn gavanaugh]

thanks all. hope all is well! happy holidays!