daughter01
Member
- Joined
- Oct 31, 2009
- Messages
- 17
- Reason
- Loved one DX
- Country
- US
- State
- PA
- City
- Harrisburg
Tomorrow we take my Mom to the ALS specialist at Hershey Medical Center. Thank goodness we have this resource so close! She was diagnosed as ALS by one neurologist but the DR. wants us to get a second opinion. I have read a lot of your posts. (Many hours scouring through your thoughts!). I have a list of things I want to talk about, but I thought it would be good to hear from anyone questions that I should ask. Here are some of the things I am working on:
-peg tube (when to consider this), she has trouble eating now
-assistance devices (bathroom, sitting, standing,hospital bed....)
-suction thing for saliva
-prescription for medicare for bathroom seat, electric wheelchair
-nursing care for future needs
-Slow loss of ability to make decisions, can we try to make some now as far as her desire for the trach and other invasive things.
-Help for my Dad this is so lovingly and heroically taking care of her!
Anything else? I think she has had this disease for at least one year, maybe two and seems to be progressing very quickly in the last couple months.
-peg tube (when to consider this), she has trouble eating now
-assistance devices (bathroom, sitting, standing,hospital bed....)
-suction thing for saliva
-prescription for medicare for bathroom seat, electric wheelchair
-nursing care for future needs
-Slow loss of ability to make decisions, can we try to make some now as far as her desire for the trach and other invasive things.
-Help for my Dad this is so lovingly and heroically taking care of her!
Anything else? I think she has had this disease for at least one year, maybe two and seems to be progressing very quickly in the last couple months.