biskethed
New member
- Joined
- Aug 21, 2009
- Messages
- 9
- Diagnosis
- 07/2009
- Country
- US
- State
- Mi
- City
- Adrian
I'm angry and there isnt anywhere to direct it to. My wife Dx 7-09 is in the final stages. She began showing symptoms in January. She cant move anything, can't talk, refuses her PEG feeding, is dehydrating, and her extremities are turning blue. She still tries to talk continuously then cries for hours because we cant understand her. She insists on getting into and out of bed every 20 minutes so we can hold a smoke for her even though she can't draw on it, and cries because she can't smoke. Why in the hell is there a disease like this with no treatment let alone cure. I want to smash things, and destroy stuff, i feel so damn useless. Our anniversary was 8/26, and i wandered around stores for 3 hours crying because buying her anything seemed so futile. ( wound up with flowers which she loved and a card i couldn't read because it made me cry like a baby) Now i am running into having to pay for full time in home care that costs as much as I earn, so my chouce is to quit my job and my kids starve to take care of her, or pay caregivers so my kids can starve and work my ass off..... DAMMIT!
sorry about the cussing.
sorry about the cussing.