I have never written any messages on your forum but I have been reading off and on since August 2005 when my father-in-law was diagnosied with Bulbar ALS. He passed away on Thursday March 9th at 6:30 p.m. He was at home with all his family present as this is where he wanted to be. He was on continuous oxygen and bipap. He didn't want the vent. Since Xmas til about the end of January he lost about 11 pounds, so they put him on feeding supplements but he didn't really gain much weight back. He could still walk with help up til about the last week and half, which then he was bedridden and we got him a hospital type bed for his room. When he wasn't too tired he could still write us notes. I feel for everyone on this forum and am so glad I found it because I learned alot about this disease from all of you. We are now trying to move on and remember all the good times and what a beautiful man is was.
Thank you again for all the support and kindness I have read on this forum.
Shirlene
Thank you again for all the support and kindness I have read on this forum.
Shirlene