taratune
Active member
- Joined
- Feb 9, 2008
- Messages
- 35
- Reason
- Loved one DX
- Country
- US
- State
- CA
- City
- san diego
My brother has lost so much muscle functioning and continues to have so much pain that he is now bed bound lying on his stomach. He has lost leg muscles, back and stomach muscles and shoulder muscles. He can still use his hands and forearms some and can move his neck. He can still talk, eat etc. He reports significant pain when on his back or if put in a sitting position for more than 5 minutes so he refuses to sit in his wheelchair or on a bedpan or commode.
He has the sensation of constipation but passes stool. He has being given laxatives, stool softeners, and enemas...but still feels constipated. He would like to have a "blow out" using something like a colonoscopy prep type thing to clean him out. The doctors have refused.
I was wondering if the sensation of constipation is common with ALS when mobility is this impaired? and also what types of bowel management programs have been helpful for others.
Thanks,
Tara
He has the sensation of constipation but passes stool. He has being given laxatives, stool softeners, and enemas...but still feels constipated. He would like to have a "blow out" using something like a colonoscopy prep type thing to clean him out. The doctors have refused.
I was wondering if the sensation of constipation is common with ALS when mobility is this impaired? and also what types of bowel management programs have been helpful for others.
Thanks,
Tara