gbellary
New member
- Joined
- Jul 29, 2008
- Messages
- 4
- Reason
- Loved one DX
- Diagnosis
- 06/2008
- Country
- US
- State
- CA
- City
- Sunnyvale
Hi All,
I have been a silent viewer for the past 30 days or so. Let me tell you that my heart warms up while looking at the spirit of generosity that I find in these forums when it comes to giving advice and offering consolation for those who seek it. Thank you all and please keep it up!
My mom was diagnosed 2 months ago (Jun 2008) with Bulbar onset MND and so far has lost the use of her right hand. She has limited ability to use her left hand. She walks OK right now . Luckily she seems to be having a slow progression at least as of now. I live in the United States and my parents live in India. I'm planning to relocate there next year so they can move in with me.
The Doctors didn't break the news to them but instead to me when I went there on a visit. My dad is 79 years old(but luckily he is atleast 15 years younger healthwise) and my mom is 73. I did not break it to them either since for now my dad is the only care giver and I didn't want him to break down and spoil his health too worrying. But now I'm starting to think that it is better for him to know the reality as he has to deal with increasingly complicated issues in the future before I'm there dealing with them myself. I need to have the talk with him and am looking for help from those of you who have done this or if you can point to any resources which deal with how to approach this . As for medical care she is receiving good care at what is a premier medical facility in India (she is taking Riluzole).
I think my dad knows at some level that it a degenerative disease but he is the ultimate optimist (Because when he first mentioned the name of the disease over phone - I inadvertently blurted out that it is incurable before stopping myself) and we have never talked about it since and I think he is in denial. Thanks again!
I have been a silent viewer for the past 30 days or so. Let me tell you that my heart warms up while looking at the spirit of generosity that I find in these forums when it comes to giving advice and offering consolation for those who seek it. Thank you all and please keep it up!
My mom was diagnosed 2 months ago (Jun 2008) with Bulbar onset MND and so far has lost the use of her right hand. She has limited ability to use her left hand. She walks OK right now . Luckily she seems to be having a slow progression at least as of now. I live in the United States and my parents live in India. I'm planning to relocate there next year so they can move in with me.
The Doctors didn't break the news to them but instead to me when I went there on a visit. My dad is 79 years old(but luckily he is atleast 15 years younger healthwise) and my mom is 73. I did not break it to them either since for now my dad is the only care giver and I didn't want him to break down and spoil his health too worrying. But now I'm starting to think that it is better for him to know the reality as he has to deal with increasingly complicated issues in the future before I'm there dealing with them myself. I need to have the talk with him and am looking for help from those of you who have done this or if you can point to any resources which deal with how to approach this . As for medical care she is receiving good care at what is a premier medical facility in India (she is taking Riluzole).
I think my dad knows at some level that it a degenerative disease but he is the ultimate optimist (Because when he first mentioned the name of the disease over phone - I inadvertently blurted out that it is incurable before stopping myself) and we have never talked about it since and I think he is in denial. Thanks again!