lynster
Distinguished member
- Joined
- Jun 12, 2008
- Messages
- 136
- Country
- US
- State
- OR
- City
- Pacific Northwest
Hi All,
The post above means All-But-Official. We saw Mike's neuro yesterday, and although he has to be tested for heavy metals and for West Nile, his neuro is only doing those tests to be sure. The Dx is ALS w/Atypical onset. It came on in his trunk first, affecting his breathing. Now on a BiPap, he is sleeping fine, and even working. Spreading to arms & legs relentlessly.
All I want to do is buy a cheap set of breakable dishes and smash them against the concrete as hard and as fast as I can! I HATE this !@#$ disease! Already I am at a loss as to what direction we go next. At least the neuro is located in the same building as the ALS clinic, so we will have lots of support. I gues we will follow her lead and take it one step at a time - first by going to a pulmonologist to reassess his breathing.
If we stumble, I know that I can count on all of you for your support. Already you feel like family. Thanks.
Lynn
The post above means All-But-Official. We saw Mike's neuro yesterday, and although he has to be tested for heavy metals and for West Nile, his neuro is only doing those tests to be sure. The Dx is ALS w/Atypical onset. It came on in his trunk first, affecting his breathing. Now on a BiPap, he is sleeping fine, and even working. Spreading to arms & legs relentlessly.
All I want to do is buy a cheap set of breakable dishes and smash them against the concrete as hard and as fast as I can! I HATE this !@#$ disease! Already I am at a loss as to what direction we go next. At least the neuro is located in the same building as the ALS clinic, so we will have lots of support. I gues we will follow her lead and take it one step at a time - first by going to a pulmonologist to reassess his breathing.
If we stumble, I know that I can count on all of you for your support. Already you feel like family. Thanks.
Lynn