Jeannie
Distinguished member
- Joined
- Dec 19, 2007
- Messages
- 222
- Reason
- Loved one DX
- Diagnosis
- 01/2008
- Country
- US
- State
- NJ
- City
- Vernon
Hello all,
I don' t post much here but I read often. My MIL is suffering with bulbar onset ALS. She is only 59. She is declining rapidly and I think my husband and his siblings are in denial. I try to tell him they all need to talk about her wishes with her so we knwo what she wants but it is all falling on deaf ears. I understand it is more that difficult to do but she can't speak and has minimal had function and now her left leg is going. She has recently fallen 4 times in the last 2 weeks and needs help showering. So I suggested getting a home health aid or a nurse and they said maybe. I guess right now I don't know what to do, seeing as she isn't my mom I can't approach the conversation, I just don't know what to do. AHHHHH She is such a wonderful person and this has been so debilitation so quickly.
I just don't know what to do. They say they will talk to her but I don't know. I only want what is best for her (as they do), but I feel like an outsider and no one is listining to me. I am close to my MIL but I don't feel like this is my place.
She is progressing very rapidly and I just don't know how to gently guide my husband to talking to his mom. We don't know if she wants a feeding tube when the time comes, respirator and even her final arrangments.
Does anyone have any suggestions? I really appreciate your time.
You are all in my thoughts and prayer
In friendship
Jeannie
I don' t post much here but I read often. My MIL is suffering with bulbar onset ALS. She is only 59. She is declining rapidly and I think my husband and his siblings are in denial. I try to tell him they all need to talk about her wishes with her so we knwo what she wants but it is all falling on deaf ears. I understand it is more that difficult to do but she can't speak and has minimal had function and now her left leg is going. She has recently fallen 4 times in the last 2 weeks and needs help showering. So I suggested getting a home health aid or a nurse and they said maybe. I guess right now I don't know what to do, seeing as she isn't my mom I can't approach the conversation, I just don't know what to do. AHHHHH She is such a wonderful person and this has been so debilitation so quickly.
I just don't know what to do. They say they will talk to her but I don't know. I only want what is best for her (as they do), but I feel like an outsider and no one is listining to me. I am close to my MIL but I don't feel like this is my place.
She is progressing very rapidly and I just don't know how to gently guide my husband to talking to his mom. We don't know if she wants a feeding tube when the time comes, respirator and even her final arrangments.
Does anyone have any suggestions? I really appreciate your time.
You are all in my thoughts and prayer
In friendship
Jeannie