stasia_23_76
New member
- Joined
- Sep 9, 2005
- Messages
- 3
Hi , my name is Stacey and I met my fiance where I used to work as they fired me do to my relationship with my fiance which was actually allowed but my personal boss found a reason to fire me and then gave me her personal opinion on how much our relationship discusted her. My fiance has ALS and has had it for about 5 1/2 yrs. We have been together for 2yrs and I took him out of the nursing home that I use to work at about a 1 1/2 ago . I don't think I could have ever prepared myself for the care that I would have to give my fiance who is 38yrs old but I love him very much and refuse to give up as that is what most of his family and ex-wife did to him when they found out what he was diagnosed with ALS.
He is in a motorized wheel chair and has little use of his arms except to control his wheel chair and no use of his legs. His lungs are okay so far but is coughing a lot more and the heat takes a lot out of him.
Being a person who has worked in a nursing home for many years is used to caring for people but I guess i have a lot of trouble dealing with the anger he has....he is easily frustrated with me when he is trying to communicate and no matter what I do it seems to be wrong which I understand all the anger and frustration because I would be too if I had to deal with everything he does day to day but I just don't know how to deal with it emotionally as I take everything personnally and my personal appearence and health has gone way down hill. I constantly feel depressed and like I could cry every second of the day and feel alone in caring for him because no one else knows how to deal with his anger either. I refuse to ever put him back into a nursing home but maybe other people could give me some pointers on how to deal with some of this stuff so I can better care for him.
He is in a motorized wheel chair and has little use of his arms except to control his wheel chair and no use of his legs. His lungs are okay so far but is coughing a lot more and the heat takes a lot out of him.
Being a person who has worked in a nursing home for many years is used to caring for people but I guess i have a lot of trouble dealing with the anger he has....he is easily frustrated with me when he is trying to communicate and no matter what I do it seems to be wrong which I understand all the anger and frustration because I would be too if I had to deal with everything he does day to day but I just don't know how to deal with it emotionally as I take everything personnally and my personal appearence and health has gone way down hill. I constantly feel depressed and like I could cry every second of the day and feel alone in caring for him because no one else knows how to deal with his anger either. I refuse to ever put him back into a nursing home but maybe other people could give me some pointers on how to deal with some of this stuff so I can better care for him.