Chizraeyes
New member
- Joined
- Mar 5, 2008
- Messages
- 2
- Reason
- Loved one DX
- Country
- US
- State
- TX
- City
- Rockport
My dad was diagnosed about a year ago after suffering symptoms for 2-3 years. Right now he has no use of one arm and car barely use the other. He has recently noticed some breathing trouble. His doctors say he is deteriorating fast. He has noticed a big deterioration in his good arm in just a weeks time.
He has already suffered thru the process of getting disability approved and just got a letter that despite 3 doctors claiming als, the judge classified him as only limited use of his arms which will not allow him to get medicaid for 30 months.
I worry about his depression. He feels useless and like life is over. I'm sure when a doctor tells you that you have 3-5 years to live that really hits hard. He hates life, his attorney, the judge, everyone around him for not knowing how to help him, etc.
I am scared because I hear so many stories, those that pass quickly, those that suffer, etc. He is full of anger, and it's hard for my mom and sisters to be around him. I am married with two small children and sometimes I don't want them around him because of his yelling, cussing, etc.
He use to be a strong Christian, he was my strength, for the whole family, and now that he is suffering none of us can be the support I know he needs. What can we do? I don't want to lose my dad. He refuses anymore tests because he hates paying for their research and getting poked and prodded.
I hate this, I hate the system for taking so long to get him thru the disability program, the judge for his decision, anyone that angers and upsets him and makes his life worse. He had hoped for some back pay to help care for the family and lost that too. Why him?
He has already suffered thru the process of getting disability approved and just got a letter that despite 3 doctors claiming als, the judge classified him as only limited use of his arms which will not allow him to get medicaid for 30 months.
I worry about his depression. He feels useless and like life is over. I'm sure when a doctor tells you that you have 3-5 years to live that really hits hard. He hates life, his attorney, the judge, everyone around him for not knowing how to help him, etc.
I am scared because I hear so many stories, those that pass quickly, those that suffer, etc. He is full of anger, and it's hard for my mom and sisters to be around him. I am married with two small children and sometimes I don't want them around him because of his yelling, cussing, etc.
He use to be a strong Christian, he was my strength, for the whole family, and now that he is suffering none of us can be the support I know he needs. What can we do? I don't want to lose my dad. He refuses anymore tests because he hates paying for their research and getting poked and prodded.
I hate this, I hate the system for taking so long to get him thru the disability program, the judge for his decision, anyone that angers and upsets him and makes his life worse. He had hoped for some back pay to help care for the family and lost that too. Why him?