- Joined
- Nov 12, 2015
- Messages
- 658
- Reason
- CALS
- Diagnosis
- 11/2015
- Country
- US
- State
- CA
- City
- San Diego
This month marks 3 years since my husband was diagnosed. He is still progressing very slowly, for which I am thankful. His left hand is completely gone, his left arm is weak, and he tells me his right grip is getting weaker. He can still walk, talk, and eat. My caregiving role is currently limited to helping him dress, tying his shoes, and cutting meat, not to mention trying to keep his (and my) spirits up. That is a challenge with ALS as all of us know. We have been lucky enough to do a little traveling and have done some wonderful things together.
He is concerned that exercise may hasten his progression; it is a fine line between trying to get enjoyment out of life and not doing things that may be harmful. He is fatigued a lot and says exercise tends to wipe him out. He also has pinned a lot of hope on the Brainstorm trial; I'm cautious about it as so many things have been tried and failed.
I have so appreciated being on this forum for the support and help. In many cases you all have helped me sort out the best course of action as we go forward. My heart breaks for everyone here, but I'm so grateful to everyone.
V
He is concerned that exercise may hasten his progression; it is a fine line between trying to get enjoyment out of life and not doing things that may be harmful. He is fatigued a lot and says exercise tends to wipe him out. He also has pinned a lot of hope on the Brainstorm trial; I'm cautious about it as so many things have been tried and failed.
I have so appreciated being on this forum for the support and help. In many cases you all have helped me sort out the best course of action as we go forward. My heart breaks for everyone here, but I'm so grateful to everyone.
V