Lolli
New member
- Joined
- Jul 16, 2018
- Messages
- 1
- Reason
- Loved one DX
- Country
- US
- State
- IN
- City
- Indianapolis
Hello I am new here so Im grateful to anyone who takes the time to respond.
I am not yet a caregiver but will be here soon. My mom has ALS or PLS the doctors cant seem to decide. It is progressing wildly. She is in a wheelchair, has lost fine motor control in her hands and is having trouble with her speech and it has only been a year. We planned to have her move here to my city early next year along with my brother and we were all going to get a place together (including my 4 yo son and boyfriend). This would allow my boyfriend and I to work and my mom to finally quit working and get some disability. We would be making the money and paying the bills and working and my brother was going to take care of our mom while i was at work. Then I would take care of her nights and my days off. I just found out my brother plans to bail and move to another state with friends now that he knows hed have to actually do something for somebody else instead of just living off of her.
Im scared. I want to do everything for my mom. Shes amazing. How am I going to be there as much as she is going to need and still go to work? I dont even know how much more it will have progressed by then. She is all there mentally and God it is a beautiful mind. I eould never dream of putting her in an assisted living facility. I have to be there for her but how do I support my family financially if she needs me to be there? I dont know how I am going to do this but I know I want her in my life and in my sons life and she deserves everything. Any tips would be appreciated.
I am not yet a caregiver but will be here soon. My mom has ALS or PLS the doctors cant seem to decide. It is progressing wildly. She is in a wheelchair, has lost fine motor control in her hands and is having trouble with her speech and it has only been a year. We planned to have her move here to my city early next year along with my brother and we were all going to get a place together (including my 4 yo son and boyfriend). This would allow my boyfriend and I to work and my mom to finally quit working and get some disability. We would be making the money and paying the bills and working and my brother was going to take care of our mom while i was at work. Then I would take care of her nights and my days off. I just found out my brother plans to bail and move to another state with friends now that he knows hed have to actually do something for somebody else instead of just living off of her.
Im scared. I want to do everything for my mom. Shes amazing. How am I going to be there as much as she is going to need and still go to work? I dont even know how much more it will have progressed by then. She is all there mentally and God it is a beautiful mind. I eould never dream of putting her in an assisted living facility. I have to be there for her but how do I support my family financially if she needs me to be there? I dont know how I am going to do this but I know I want her in my life and in my sons life and she deserves everything. Any tips would be appreciated.
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