Old 07-09-2018, 08:27 AM #1 (permalink)
Roger4143's Avatar
New Member
 
Join Date: 2017
City: Fair Oaks Ranch
State: TX
Country: US
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 11
Roger4143 is on a distinguished road
Roger4143 Roger4143 is offline
New Member

Roger4143's Avatar
Join Date: 2017
City: Fair Oaks Ranch
State: TX
Country: US
Diagnosed: 05/2017
Interest: I am a caregiver for someone with ALS/MND.
Posts: 11
Roger4143 is on a distinguished road
Default What to do when PALS is choking?

My wife has started choking more frequently — usually on liquids, but sometimes on grainy food. I don’t know what to do in theses cases. She continues to cough for a long time. We have used the cough assist with some success, but have not yet used the suction device. She gets a bit panicked and so do I. Any suggestions? We are scheduled for a PEG later this month.
Roger4143 is offline   Reply With QuoteReply With Quote
Old 07-09-2018, 08:43 AM #2 (permalink)
KarenNWendyn's Avatar
Senior Member
 
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 861
KarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud of
KarenNWendyn KarenNWendyn is offline
Senior Member

KarenNWendyn's Avatar
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 861
KarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud of
Default Re: What to do when PALS is choking?

The PEG should solve most of the problem.

If she’s choking on solid foods, you may have to employ the Heimlich maneuver (look it up), though sometimes slapping the heel of your hand on her mid back (“back blows”) will also do the trick.

If she’s choking on liquids, belching may help. Also, tilting head forward while drinking liquids may help liquids go down the esophagus rather than into the lungs.

Again, the PEG should help prevent most of this.
KarenNWendyn is offline   Reply With QuoteReply With Quote
Old 07-09-2018, 09:04 AM #3 (permalink)
beauty4everyone's Avatar
New Member
 
Join Date: 2018
City: Someplace
State: Ville
Country: US
Diagnosed: 04/2018
Interest: I have been diagnosed with ALS.
Posts: 27
beauty4everyone is on a distinguished road
beauty4everyone beauty4everyone is online now
New Member
beauty4everyone's Avatar
Join Date: 2018
City: Someplace
State: Ville
Country: US
Diagnosed: 04/2018
Interest: I have been diagnosed with ALS.
Posts: 27
beauty4everyone is on a distinguished road
Default Re: What to do when PALS is choking?

**CHECK WITH PHYSICIAN FIRST BEFORE USING **
Thickened fluids: From Wikipedia, the free encyclopedia https://en.wikipedia.org/wiki/Thickened_fluids

"There are multiple commercial thickeners on the market for thickening liquids. Vendors are also offer pre-thickened liquids such as water, juice, and milk in individual serving sized cartons. Some commercial thickeners use modified maize starch, which helps support hydration and nutritional levels, while others use xanthan gum."

In search window, type in: thickener for liquids for als patients - or - https://www.bing.com/images/search?q...ents&FORM=IGRE

I'm not recommending, only providing information. Was necessary for friend with cancer. Hope this may be helpful. Take care and may you find something beautiful today to lift your spirits. May Blessings abound - Bea.
beauty4everyone is online now   Reply With QuoteReply With Quote
Old 07-09-2018, 09:43 AM #4 (permalink)
KarenNWendyn's Avatar
Senior Member
 
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 861
KarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud of
KarenNWendyn KarenNWendyn is offline
Senior Member

KarenNWendyn's Avatar
Join Date: 2017
City: Southern Oregon
State: Oregon
Country: US
Diagnosed: 07/2017
Interest: I have been diagnosed with ALS.
Posts: 861
KarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud ofKarenNWendyn has much to be proud of
Default Re: What to do when PALS is choking?

Addendum to above: You may already know this, but thickening liquids with “thick-it” also helps. I am sure others will chime in regarding other thickeners .
KarenNWendyn is offline   Reply With QuoteReply With Quote
Old 07-09-2018, 09:48 AM #5 (permalink)
Extremely Helpful Member
 
Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,715
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
KimT KimT is online now
Extremely Helpful Member

Join Date: 2014
City: The Beach
State: South
Country: US
Diagnosed: 08/2015
Interest: I have been diagnosed with ALS.
Posts: 2,715
KimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond reputeKimT has a reputation beyond repute
Default Re: What to do when PALS is choking?

Blending her food to make it one consistency might also help. You can add juice, broth or other liquid to the solid food to create a milkshake-like thickness.

Glad she's getting her PEG soon.
KimT is online now   Reply With QuoteReply With Quote
Old 07-10-2018, 02:59 AM #6 (permalink)
lgelb's Avatar
Extremely Helpful Member

Forum Moderator
 
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,812
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
♥ lgelb lgelb is offline
Extremely Helpful Member

Forum Moderator

lgelb's Avatar
Join Date: 2009
City: Seattle
State: WA
Country: US
Diagnosed: 09/2009
Interest: I lost a loved one to ALS/MND.
Posts: 5,812
lgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond reputelgelb has a reputation beyond repute
Default Re: What to do when PALS is choking?

Cornstarch or flour or cooked cream of rice is a cheaper thickener, as is a raw or semi-cooked egg. Excessive gum consumption can cause GI issues.

Avoid coarse/grainy textures, skins and small bits, from cornbread to anything with a seed or hard core. Butter can help eggs go down, etc. Smooth foods out. And warming them (or for some, cooling them e.g. icy smoothie) may help. We've had threads about blending nut butters, eggs, ice cream, sorbet, softer frozen, canned or fresh fruit like peeled peaches, etc.
lgelb is offline   Reply With QuoteReply With Quote
Old 07-10-2018, 05:37 AM #7 (permalink)
tripete's Avatar
Senior Member
 
Join Date: 2014
City: Lancaster
State: PA
Country: US
Diagnosed: 12/2014
Interest: I have been diagnosed with ALS.
Posts: 939
tripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud of
tripete tripete is offline
Senior Member
tripete's Avatar
Join Date: 2014
City: Lancaster
State: PA
Country: US
Diagnosed: 12/2014
Interest: I have been diagnosed with ALS.
Posts: 939
tripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud oftripete has much to be proud of
Default Re: What to do when PALS is choking?

The suggestions here are all good to keep her from chocking but there is little to be done during the choking itself. i try and tell myself to keep calm and to try and relax. if i am choking because of mucus i get some robotussin in me it seems to break it up in minutes. i also take 1 alka seltzer in thickened water each morning it seems to clean the mucus "pallet" wich has helped. beawre though that alka seltser contains asprin and can lead to ultcers.

other than that i do not know how to stop the choking/hyper gag reflex once it starts. i am on a diet of all things pudding consistancy.
tripete is offline   Reply With QuoteReply With Quote
Reply

Tags
choking, cough assist, food, peg, suction


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
PLS and choking Edward E General Discussion About PLS 20 03-02-2015 03:13 PM
Choking bigritt General Discussion About ALS/MND 0 06-09-2014 10:51 AM
choking? Barbie Current Caregivers (CALS) 14 05-31-2012 09:11 PM
choking Jeanie Current Caregivers (CALS) 3 04-27-2008 07:38 PM
choking...please help dana General Discussion About ALS/MND 19 05-19-2005 10:01 AM


All times are GMT -5. The time now is 01:11 PM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016