- Joined
- May 9, 2016
- Messages
- 1,529
- Reason
- Lost a loved one
- Diagnosis
- 06/2016
- Country
- US
- State
- MN
- City
- Minneapolis
SO I never thought I would say “Great! Brian has appendicitis!” But after a harrowing week I am saying that exactly. Brian started Radi this week and they gave him Prednidone with that to prevent allergic reactions. The Dr thought his rapid escalation of weakness this week was a reaction to Prednisone. So yesterday we stopped both drugs and were to resume with Radi Monday. This morning, he woke with horrid stomach pain, no bowel movement for third day. Per Drs advice we went to ER. Appendicitis! So they are starting antibiotics first to see if that works because as we know general anesthesia is riskier in PALS. However, given that his lung function is perfectly normal I am confident if it is needed he will come through it too. I am so relieved the alarming escalation in weakness this week had a cause that was not just the ALS or the Radicava. His white count in at 21, so much infection there. I will be keeping a very close eye while he is hospitalized too.