worrieddaughter77
Active member
- Joined
- Oct 6, 2017
- Messages
- 95
- Reason
- Loved one DX
- Diagnosis
- 10/2017
- Country
- US
- State
- IL
- City
- Oulu
Hi all, I'm new to the forum and I'm not even a true CALS yet, my dad was just diagnosed and he is still in good shape, considering.... He lost speech completely, but the weakness in his hand and legs does not prevent him from walking and eating by himself. He can't write anymore though...
So here I am, 3 am in the morning, my 9 months old baby asleep, my husband is asleep and I'm crying and reading everything on here.... tomorrow I will be tired and won't be able to be a good mother and wife and daughter.
We live all together, me and my husband, his two sons from first marriage, our new baby girl and my parents... a really mixed family... especially given that my parents speak little English but my husband and step sons are American.
And then the diagnosis hit. And my dad is declining fast. And the future for my family I imagined is taken away from me.
I have a feeling that ALS will bring us closer together, but I just hope I can stay strong through what's coming. I'm terrified.
Also, the last two weeks I barely showed up at work. It is a flexible job, but still, how long can I continue on like this without losing it.
Sorry for the ramble, I know I jumped in on a thread I don't belong.
So here I am, 3 am in the morning, my 9 months old baby asleep, my husband is asleep and I'm crying and reading everything on here.... tomorrow I will be tired and won't be able to be a good mother and wife and daughter.
We live all together, me and my husband, his two sons from first marriage, our new baby girl and my parents... a really mixed family... especially given that my parents speak little English but my husband and step sons are American.
And then the diagnosis hit. And my dad is declining fast. And the future for my family I imagined is taken away from me.
I have a feeling that ALS will bring us closer together, but I just hope I can stay strong through what's coming. I'm terrified.
Also, the last two weeks I barely showed up at work. It is a flexible job, but still, how long can I continue on like this without losing it.
Sorry for the ramble, I know I jumped in on a thread I don't belong.