diagnosed2016
Distinguished member
- Joined
- Apr 30, 2016
- Messages
- 190
- Reason
- Lost a loved one
- Diagnosis
- 07/2016
- Country
- US
- State
- CA
- City
- California
Had clinic day yesterday, first time in 5 months. Hubby has said he feels a little short of breath lying down so he wanted to check that out. Turns out his numbers have to plummeted since our last appt. he was over 100% and now is in the 70s. Very discouraging. RT said he needs to start using a trilogy. I really thought we had more time before that. So I know virtually nothing about them, about what to do or how it will work. Tips are appreciated.
PT said it looks like his ankles are getting really really weak and combined with his weak hips probably should do wheelchair assessment soon. He didn't want to do it yesterday.
Dr. Said he should up his antideppressant as he didn't seem very happy yesterday. Because he should be overjoyed to be told he needs breathing assistance and a wheelchair?! As we were leaving, Dr says smugly, " I hope you are able to tolerate the Radivica" (supposed to start in a couple weeks).
Just an overall shitty day.
I think we are done with clinic. We both dislike the Dr and they have literally messed up every prescription they've ever written. It's such a waste of time.
PT said it looks like his ankles are getting really really weak and combined with his weak hips probably should do wheelchair assessment soon. He didn't want to do it yesterday.
Dr. Said he should up his antideppressant as he didn't seem very happy yesterday. Because he should be overjoyed to be told he needs breathing assistance and a wheelchair?! As we were leaving, Dr says smugly, " I hope you are able to tolerate the Radivica" (supposed to start in a couple weeks).
Just an overall shitty day.
I think we are done with clinic. We both dislike the Dr and they have literally messed up every prescription they've ever written. It's such a waste of time.