- Joined
- May 9, 2016
- Messages
- 1,529
- Reason
- Lost a loved one
- Diagnosis
- 06/2016
- Country
- US
- State
- MN
- City
- Minneapolis
Random thought today is that nothing could have ever prepared me for seeing the man who built our garage on the floor, unable to make his feet work. He got up but wow, just wow.
Nothing could have prepared me to have the letter he plans to send to Dignitas explaining his reasons for wishing to end his life in my email, from his sister who is helping him with it and waiting for my editorial opinion ( thus was a surprise e-mail). I knew he wanted to do the Dignitas thing eventually but eventually is looking closer and I did not know this email was coming from my sister in law or that he asked her for help).
Nothing could prepare me for the face I see in the mirror today. It aged 8 years in one.
I feel beyond blogs and even in some ways "regular" friends. I don't think I can be understood by those not in these shoes. I say that with no bitterness and no self pity- just having an experience with a rare illness that shadows us everyday everywhere.
You blink and it all changes, for the worse. No more driving, Walker only starting three weeks back. It seemed to happen literally overnight.Last night he tells me his breathing is changing. No words, just no words.
Nothing could have prepared me to have the letter he plans to send to Dignitas explaining his reasons for wishing to end his life in my email, from his sister who is helping him with it and waiting for my editorial opinion ( thus was a surprise e-mail). I knew he wanted to do the Dignitas thing eventually but eventually is looking closer and I did not know this email was coming from my sister in law or that he asked her for help).
Nothing could prepare me for the face I see in the mirror today. It aged 8 years in one.
I feel beyond blogs and even in some ways "regular" friends. I don't think I can be understood by those not in these shoes. I say that with no bitterness and no self pity- just having an experience with a rare illness that shadows us everyday everywhere.
You blink and it all changes, for the worse. No more driving, Walker only starting three weeks back. It seemed to happen literally overnight.Last night he tells me his breathing is changing. No words, just no words.