JonK
New member
- Joined
- Aug 6, 2017
- Messages
- 7
- Reason
- CALS
- Country
- US
- State
- Kentucky
- City
- Louisville
My wife was diagnosed with ALS in 2012 at 30. Her disease has progressed to where she is fully paralyzed and dependent on a ventilator. Adding to her troubles, her eyes have slowed down to where she cannot use her eye gaze device (she used to be a regular contributor to these forums). Because of the communication problems, caring for her can become frustrating for both of us. We use a yes/no system where she moves her eyes to the right or left, but even that is slowly breaking down.
It feels like I'm losing her even though she's still here. Do any other caregivers have advice for dealing with this kind of pain?
It feels like I'm losing her even though she's still here. Do any other caregivers have advice for dealing with this kind of pain?