Labinma
Active member
- Joined
- Sep 14, 2016
- Messages
- 73
- Reason
- CALS
- Diagnosis
- 06/2014
- Country
- Us
- State
- Ma
- City
- Boston
I ve written here so many times with little questions along the way. My PALS is literally a walking skeleton but getting up and going to work everyday. He wont communicate a thing. He really looked wiped today. I don't know what to say, what to do, or how to help. This is the craziest, saddest situation I have ever found myself. He wants zero assistance and I think is only taking Nuplrexa (sp) as far as I can see. Only thing he said the other day to me, "so what's your plan". Uh? I had a plan a year ago to downsize to a ranch, retro fit a mini van and get into a smaller mortgage that I could afford the day he cant work. He was offended by this then and I was in the dog house for even bringing it up. I get zero direction from him and finally on high dose of anti depressants just to deal with the lack of control and inability to help this person. I am a planner, take charge, meet head on type. This has practically killed me. I am finally in a live day to day and appreciate what you have, and then he says, what is your plan? Really? Much like his body is restricting him, my mind is restricted, confused and frozen. Than you for the venting forum. This is a mean disease for all affected.