soakland
Member
- Joined
- Apr 24, 2016
- Messages
- 18
- Reason
- Learn about ALS
- Country
- US
- State
- FL
- City
- Cape Coral
I'm wondering how many caregivers on this forum have experienced criticism from family members regarding your caregiving? My PALS' best friend emailed a family member and complained. And my family member believed them! What is worse, my PALS also complained about me not being nice enough. While I agree that we need to be compassionate, I think we also have to be realistic.
On a separate but related note, is it true that PALS have a diminished sense of apathy for others' needs and wants?
I think people have a tendency to be hard on a caregiver who may not meet their personal definition of caregiver. The "pie in the sky" person always smiling, content, and giving.
Is this normal? I must say I was shocked when I received an email saying they didn't think I was providing good care. Of course this is from a long-distance. I emailed back and defended myself.
Am I a terrible person? I know I need to work on some things but I am here 24/7 for my PALS wife, and also care for my elderly father who is 95. Both at the same time.
On a separate but related note, is it true that PALS have a diminished sense of apathy for others' needs and wants?
I think people have a tendency to be hard on a caregiver who may not meet their personal definition of caregiver. The "pie in the sky" person always smiling, content, and giving.
Is this normal? I must say I was shocked when I received an email saying they didn't think I was providing good care. Of course this is from a long-distance. I emailed back and defended myself.
Am I a terrible person? I know I need to work on some things but I am here 24/7 for my PALS wife, and also care for my elderly father who is 95. Both at the same time.