Jlynn
Distinguished member
- Joined
- Mar 16, 2016
- Messages
- 415
- Reason
- Lost a loved one
- Diagnosis
- 12/2015
- Country
- US
- State
- NH
- City
- Wolfeboro
I don't write here much but am one that feels like I wouldn't be able to mentally get through this horrible progression of ALS without the people here. Mike is 47. He's my little brother, single with 2 young kids. I happen to be single with 2 grown children and live nearby so I am his main caregiver. He has chosen to let things happen naturally. No meds. Rarely sees a doctor. No feeding tube. Nothing. He falls a lot, sleeps a lot and eats very little. Drinks some ensure. He weighs between 115-120. Watching this progression is literally the hardest thing I have ever witnessed in my life and let me tell you I have had a few unexpected bumps in my life. My brother has a very mean ex-wife of 5 years who even to this day takes him to court to squeeze money out of him. Last week she went to court and asked for his life insurance. That was January 3rd and since he has been in bed and hasn't eaten much at all. Almost killed him but definitely seemed to hasten the progression. Sooooo.....here I sit early on a Sunday morning with puffy eyes from crying due to sadness for my brother and anger at the ex. Mostly the sadness for Mike. He is a twitching bag of bones. God help him. Thanks for letting me vent.