- Joined
- Jul 25, 2015
- Messages
- 1,606
- Reason
- CALS
- Diagnosis
- 07/2015
- Country
- US
- State
- tx
- City
- Dallas
I have noticed a few changes with Steve regarding his sleep and his breathing. Today I had to insist that he actually sit down and talk to me. Apparently, the reason he is waking up so much at night is because he gets sinus congested and can't breath through his nose. He is on the Trilogy.
We have changed the hoses, masks, and are using distilled water. He does use the humidifier. I also asked him to try the Alka Seltzer plus night. It worked ok that night but next day he was congested so wouldn't take anymore.
He is also clearing his throat a lot during the day and has moments of panic about not breathing right and has times of feeling short of breathe. He does not use it all during the day and I suspect he should. I also suspect he should be using the cough assist because of my hearing him try to clear his throat.
It is obvious to me that he is having issues he will not tell me about as he is also having trouble swallowing, getting food stuck in his throat and is only eating very soft foods and shakes.
Lastly, it is very hard to stay on top of these things because he doesn't tell me. I have to guess than breakdown and guilt him into telling me. Also, if it concerns taking pills or a rigid schedule he will not do it. I Can say that he fears the breathing issues more than he fears the losses he is having with arms and legs.
Does anyone have any suggestions and if you have any questions that may help me to figure out how to help him? I can do my best to get answers from him.
We have changed the hoses, masks, and are using distilled water. He does use the humidifier. I also asked him to try the Alka Seltzer plus night. It worked ok that night but next day he was congested so wouldn't take anymore.
He is also clearing his throat a lot during the day and has moments of panic about not breathing right and has times of feeling short of breathe. He does not use it all during the day and I suspect he should. I also suspect he should be using the cough assist because of my hearing him try to clear his throat.
It is obvious to me that he is having issues he will not tell me about as he is also having trouble swallowing, getting food stuck in his throat and is only eating very soft foods and shakes.
Lastly, it is very hard to stay on top of these things because he doesn't tell me. I have to guess than breakdown and guilt him into telling me. Also, if it concerns taking pills or a rigid schedule he will not do it. I Can say that he fears the breathing issues more than he fears the losses he is having with arms and legs.
Does anyone have any suggestions and if you have any questions that may help me to figure out how to help him? I can do my best to get answers from him.