Jhill
Distinguished member
- Joined
- Mar 13, 2016
- Messages
- 170
- Reason
- CALS
- Diagnosis
- 03/2016
- Country
- US
- State
- PA
- City
- Oreland
I have posted or commented a few times, but wanted to let you know my love and I.
My husband, Bob, was diagnosed in March, the day before his 65th birthday and we were told the standard 2-5 years. He had noticed fasciculations just last December.
Unfortunately, he has progressed very rapidly. He cannot use his arms or legs and is now using the trilogy 24/7.
Since he has chosen not to tube feed or vent, we have brought in hospice.
I am his full time caregiver, which I am happy to do for this wonderful man.
He is a retired police officer, who worked 2 jobs his entire life to raise our 5 children. He worked his other job until April of this year.
Wishing he could have enjoyed some more time to relax before this monster came into our lives.
Thanks for listening.
Joan
My husband, Bob, was diagnosed in March, the day before his 65th birthday and we were told the standard 2-5 years. He had noticed fasciculations just last December.
Unfortunately, he has progressed very rapidly. He cannot use his arms or legs and is now using the trilogy 24/7.
Since he has chosen not to tube feed or vent, we have brought in hospice.
I am his full time caregiver, which I am happy to do for this wonderful man.
He is a retired police officer, who worked 2 jobs his entire life to raise our 5 children. He worked his other job until April of this year.
Wishing he could have enjoyed some more time to relax before this monster came into our lives.
Thanks for listening.
Joan