Staying strong
Active member
- Joined
- Nov 20, 2014
- Messages
- 78
- Reason
- Lost a loved one
- Diagnosis
- 5/2011
- Country
- US
- State
- ct
- City
- danbury
we are 5 1/2 years into our Journey with my dear Wife's ALS. Now that she needs help during the day that her 80 year old Mom ( sweet lady ) can't give her we now have Aids 5 days a week while I'm at work. This is out of pocket with the help of My Parents. On the weekends its me 24 hours a Day caring for my Sweetheart along with housework and raising our 2 wonderful children. This weekend after 5 days of 3-4 hours of sleep at night I pretty much Fell apart. Laying on the floor crying and swearing at the World. Worried about me my Wife texted her lead aid and had her call my parents and her parents to come and that I was having a meltdown. While my parents jumped in the Car and headed to Help. My in laws called the Police. Needless to say this was upsetting to my Wife and myself. So while my parents were there helping relax me the cops and my father in law ( retired cop ) storm in the door. Now I'm left to explain why my wife has a towel in her mouth. And why won't she say anything? Well officer she has als and hasn't spoke in 2 years and the towel is for excessive saliva. Didn't her father explain that to you???. Well next began the screaming match between myself and the father in law. In the middle of this mess the ambulance crew shows up. They start asking there normal questions as they should. So I look at my father in law and tell him go ahead let's see if you know any of the answers. He didn't know 1 stinking thing. I pulled out my Emergency sheet with Medication list. Doctors list Etc and the medic said " wow you got your stuff together" yes I do. Thankfull the police quickly realized I wasn't the problem and they left and asked told the Father in law to leave. The Medic took me aside and told me i need to give myself a break once in a while and she said she gave me a lot of credit for how much I had obviously been doing. That felt good. Now I just need to figure out how to do it. Afterall I haven't left the house to go anywhere besides work in 2 years. Sorry for the Rant. Just another day as a caregiver I guess ?