Good morning and thank you for your replies.
yes, it has been a while since my last visit and a lot has changed, mainly in Julie's health and mobility. I will say it as it is and in the fewest amount of words highlighting the answers to the questions above.
Julie still sleeps all night (12*-14 hours)
Julie still thinks there is nothing wrong with her
Julie has lost a huge amount of weight
Julie has no idea how much weight she has lost, she cannot see it
Julie has absolutely no understanding what is going to happen if she keeps on loosing weight
Julie wants to live forever
Julie does not want to die
Julie is horrified if I suggest that she may die sooner than later if she does not eat.
So, as you can see nothing has changed from the last time I were here other than Julie is now a bag of bones and skin.
It is not me making the decision for the PEG, well right now it is but Julie has an appointment with the doctor on Tuesday 3 days before the scheduled PEG fitting to asses Julie's capacity to give the go ahead.
I have done all that I can to keep my lovely wife alive, it is now up to the doctor and Julie.
Yes, I was thinking on the terms of a slow overnight feed as Julie is now pretty much incapable of swallowing her Ensure and is physically choking and complaining of feeling full all of the time. It is like Julie's body wants to shut down, lay down and die without letting Julie know...
Anyway, I hope this helps to explain where we are right now.
Julie does not want to die, I do not want Julie to die. All I can do is to carry out the wishes Julie would have made if she were able to before dementia. ALS is slowly taking away the right to live but Dementia is actually killing her.
Dave X