SLAUGHTER1555
Distinguished member
- Joined
- Jul 12, 2015
- Messages
- 107
- Reason
- CALS
- Diagnosis
- 05/2015
- Country
- US
- State
- Oh
- City
- cincinnati
Hello Cals and Pals that may be reading its been awhile since ive been here for a lack of a better word hope everyone has been well.
So much has happened since i was here last, i wish i could say for the best but its all the opposite. My Pals has had some slight physical changes but most things are the same. His hands has curled up a lil so he mostly uses his pointing finger and thumb. But my physical strain has become extremely taxing smh. My back is broke and i dont know how much longer i can do this myself.
There is no help where we live in Butler County they say the 2600 bucks he get a month is too much income to get help crom the state. Medicare only pays for 1hr of bathing and it takes longer and my Pals is a 2 person assit. They dont and wont send 2 ppl to the house. One thing i am learning is you can end up in this thing alone for sure. Some of his kids mainly one who i thought would have been more invested in this is so far away in What his dad is dealing with but i guess everyone deals in there own way.
So here is my crossroad im currently at, i feel like physically i cant keep caring for my Pals i need help it has gotten so hard. I reached out to our ALS person and she really helped and gave me a solution and that was to put my Pals in a care facility i which i swore never to do. Ive worked in these places before and they can be horrible. But what choice do i have?
I have been struggling with this for the last 2 weeks. My Pals is totally against it but he is not the one hurting. We went to our ALS clinc appointment on the 16th and we were there crying, he feels i will leave him or start out coming and then slowly slack off. I tried talking to him hoping he can understand a lil that its not possible for one person to handle him. I worry how will i be able to shower him or turn him. Lately my back has been hurting and giving out more.
Im 4ft11in he's 6ft4in 217lbs of desd weight its physically killing me. But at the same time i feel bad for even considering any if this but i have no choice i am at the breaking point of caring for him.
We are working on moving back to Hamilton County cuz they have more services that can probably help us. Specially with transportation like using the Access buses or public transportation. But if im struggling now with him how is moving going to be any different.
I cry every time i have to think of this im so tired physically sometimes i feel like idk i would say giving up but i dont feel like giving up but that I'm just tired and need a time out. Doing this 24/7 its exhausting.
Then i start to think who care for him like me and do this and do that smh ugh i hate this!! So Much!!!!!!
So much has happened since i was here last, i wish i could say for the best but its all the opposite. My Pals has had some slight physical changes but most things are the same. His hands has curled up a lil so he mostly uses his pointing finger and thumb. But my physical strain has become extremely taxing smh. My back is broke and i dont know how much longer i can do this myself.
There is no help where we live in Butler County they say the 2600 bucks he get a month is too much income to get help crom the state. Medicare only pays for 1hr of bathing and it takes longer and my Pals is a 2 person assit. They dont and wont send 2 ppl to the house. One thing i am learning is you can end up in this thing alone for sure. Some of his kids mainly one who i thought would have been more invested in this is so far away in What his dad is dealing with but i guess everyone deals in there own way.
So here is my crossroad im currently at, i feel like physically i cant keep caring for my Pals i need help it has gotten so hard. I reached out to our ALS person and she really helped and gave me a solution and that was to put my Pals in a care facility i which i swore never to do. Ive worked in these places before and they can be horrible. But what choice do i have?
I have been struggling with this for the last 2 weeks. My Pals is totally against it but he is not the one hurting. We went to our ALS clinc appointment on the 16th and we were there crying, he feels i will leave him or start out coming and then slowly slack off. I tried talking to him hoping he can understand a lil that its not possible for one person to handle him. I worry how will i be able to shower him or turn him. Lately my back has been hurting and giving out more.
Im 4ft11in he's 6ft4in 217lbs of desd weight its physically killing me. But at the same time i feel bad for even considering any if this but i have no choice i am at the breaking point of caring for him.
We are working on moving back to Hamilton County cuz they have more services that can probably help us. Specially with transportation like using the Access buses or public transportation. But if im struggling now with him how is moving going to be any different.
I cry every time i have to think of this im so tired physically sometimes i feel like idk i would say giving up but i dont feel like giving up but that I'm just tired and need a time out. Doing this 24/7 its exhausting.
Then i start to think who care for him like me and do this and do that smh ugh i hate this!! So Much!!!!!!