SheilaZ
Active member
- Joined
- Jan 24, 2016
- Messages
- 51
- Reason
- Lost a loved one
- Diagnosis
- 01/2016
- Country
- US
- State
- West Virginia
- City
- 111111
I've been reading a lot of post, and I was wondering how does one know how long one has with ALS. The million dollar question, I'm sure! My Hubby was diagnosed last month, though they think he has had it for 2 years, already! He has severe breathing issues, he can't walk as far as 40 ft, until he's having breathing problems. He has muscle loss in his hands and fasciculations from neck down to his legs. He has severe neck pain, drooping...we are going tomorrow for a "Head Master" brace...used to support his neck. Also, getting a wheel chair, it's to difficult for him to walk, legs are weak, but mostly his breathing is so bad. He is on a Trilogy, at night and a lot during the day. He can't lay down to sleep, or at anytime! He can't breath at all laying down. So much we want to do, he is so strong....I feel as if everything is happening so fast...I'm scared...he's the love of my life...my best friend!
GOD Bless Everyone
Sheila
GOD Bless Everyone
Sheila