You are right Becky, and I do try to keep myself distracted from thinking about what we are losing..... My husband and I are trying to use whatever "good" days he has left to the fullest. We are actually on vacation in FL. Had this trip planned well over a year ago, and I almost cancelled it. Dave's neuro told us to "go - enjoy yourselves", and so we did/are. Dave is still quite functional but says he feels weaker everyday. ALS has hit him globally - all four extremities, chest, shoulders, hands and I feel has progressed quickly since the fasciculations first started in early Sept. '15. But, I am keeping him as active as I can. Walking especially, but it is so hard to judge if he is over taxing himself. We went for a short hike a few days ago and saw nesting Bald Eagles. Dave has always been a casual "birder", and so he was happy, excited, and wanted to walk more/see more. The next day his legs really hurt, and then of course I worry if this causes more muscle to die or exascerbates the condition. Frustrating that I don't know if we are causing more harm, but also wanting to keep the remaining muscles flexible and working.