madam419
New member
- Joined
- Nov 2, 2015
- Messages
- 6
- Reason
- Loved one DX
- Diagnosis
- 10/2015
- Country
- US
- State
- TX
- City
- Midland
Hello,
My husband (34) was diagnosed two weeks ago. While I have been watching the progression over the last 4 months and have been able to somewhat prepare myself, I too am at a loss. I have been with this man since we were in high school, we have a 5 year old little girl, and are in complete and utter shock as well as at a loss for what to do and where to begin.
He went to the doctor in June for what we thought was a herniated disc in his lower back. After the initial lumbar MRI they did a lower body EMG and thought that the cause of his drop foot and muscle weakness was due to a pinched perennial nerve in his knee. So the doctor sent him to Houston. That neurologist took one look at him and after about 10 minutes of the routine strength tests and hearing that my husband has had problems swallowing and breathing over the last year referred him to a Neuromuscular specialist. Over the last 2 months they have done 5 MRI's 2 whole body EMGs, countless blood tests, a spinal tap, Genetics testing, Pulmonary Lung Function tests and the barium swallow test. We received the diagnosis of MDN with a very high probability of ALS, we will get the final diagnosis in the coming weeks.
My husband (34) was diagnosed two weeks ago. While I have been watching the progression over the last 4 months and have been able to somewhat prepare myself, I too am at a loss. I have been with this man since we were in high school, we have a 5 year old little girl, and are in complete and utter shock as well as at a loss for what to do and where to begin.
He went to the doctor in June for what we thought was a herniated disc in his lower back. After the initial lumbar MRI they did a lower body EMG and thought that the cause of his drop foot and muscle weakness was due to a pinched perennial nerve in his knee. So the doctor sent him to Houston. That neurologist took one look at him and after about 10 minutes of the routine strength tests and hearing that my husband has had problems swallowing and breathing over the last year referred him to a Neuromuscular specialist. Over the last 2 months they have done 5 MRI's 2 whole body EMGs, countless blood tests, a spinal tap, Genetics testing, Pulmonary Lung Function tests and the barium swallow test. We received the diagnosis of MDN with a very high probability of ALS, we will get the final diagnosis in the coming weeks.
