KatieNBoyd
Distinguished member
- Joined
- Oct 17, 2015
- Messages
- 151
- Reason
- Lost a loved one
- Diagnosis
- 11/2015
- Country
- US
- State
- MT
- City
- Boyd
Hi there, we were just given the diagnosis finally this week though it is something we already knew. The EMG just made it more definitive. My husband is 59. He has been in construction all of his life building homes, cabinets and furniture now he can't open a water bottle without help. He weighed 155 in June and is down to 135.2 today. His clothes hang on him. He becomes breathless after doing things. The twitching muscles don't seem to bother him anymore. He is keeping a diary of what he eats because he didn't understand that he wasn't eating enough in calories. We live outside of Billings Montana and are being connected with MDA. We have not yet really met with an ALS specialists. We read things on here and have gathered information from other sites as well. We are trying to plan a path so to speak. We have filed for Disability and gotten paper work in order. We are outdoor people and rifle season opens tomorrow so we are going hunting. Though hunting antelope two weeks ago exhausted him, the smile on his face when he got his buck was worth it. We are fortunate to be surrounded by wonderful friends and family. I guess I am wondering now what? I suppose we will get that when we meet with MDA. I was hoping to find others on this site that are here in MT.