DreamsEnd
Distinguished member
- Joined
- Jan 24, 2014
- Messages
- 449
- Reason
- Lost a loved one
- Diagnosis
- 01/2014
- Country
- US
- State
- AZ
- City
- Cottonwood
This is so hard right now. Not sure if it's from medications or the disease but Jesse has become paranoid and delusional. He wouldn't let me give him a suppository yesterday because I "didn't do it right" and insisted I call Hospice nurse to do it although I had done it many times. When she was here he asked to speak to her privately and then told her I was filming him and he didn't like it. (I had taken two photos of a blistering rash on his forearms and sent them to her.) he later wanted to call her on speaker phone to tell her we were isolating him. He was in bed waiting for his bowels to move. He is completely incontinent and as much fluids as I put in his tube his urine is very cloudy and orange and concentrated. (Thank god for Condom Caths!) Mike/Atsugi had posted something about concentrated urine and CO2 levels but I can't find it.
He desperately needs his bipap but wants it off so he can talk/babble non stop. It's almost impossible to decipher his speech and he refuses Tobii. If I try to repeat back to him what he's asking for, he says back off and don't put words in my mouth. He's talking about Buffalos (?) and all kinds of weird things.
I cut back his morphine yesterday to see if that helped, and his sister told him I had cut back pain med. that made him furious.
His brother is here helping and I couldn't do it without him. He is amazing, gentle and kind and very helpful. Their sister desperately wants to help and she's been a blessing but she agitates him so I'm limiting her contact.
I love, love, love this guy and wonder what today will bring when he wakes up. At least he's been sleeping thru the night so I'm getting good rest.
Gotta go,
Sherry
He desperately needs his bipap but wants it off so he can talk/babble non stop. It's almost impossible to decipher his speech and he refuses Tobii. If I try to repeat back to him what he's asking for, he says back off and don't put words in my mouth. He's talking about Buffalos (?) and all kinds of weird things.
I cut back his morphine yesterday to see if that helped, and his sister told him I had cut back pain med. that made him furious.
His brother is here helping and I couldn't do it without him. He is amazing, gentle and kind and very helpful. Their sister desperately wants to help and she's been a blessing but she agitates him so I'm limiting her contact.
I love, love, love this guy and wonder what today will bring when he wakes up. At least he's been sleeping thru the night so I'm getting good rest.
Gotta go,
Sherry