gooseberry
Extremely helpful member
- Joined
- Jul 2, 2014
- Messages
- 3,501
- Reason
- Lost a loved one
- Diagnosis
- 5/2014
- Country
- US
- State
- FL
- City
- Tampa
When we started this journey, Steve was ready to commit suicide he was so overwhelmed by his diagnosis. He said up front, no peg, no trache, just let me go quickly.
After travelling and doing many fun family things this last 16 months since he was diagnosed, now he is thinking about a trache. This discussion started today because my 13 yr old asked if Steve was getting one. I said dad had said no to it. He was relieved. I was relaying this to Steve when he said well, I have been thinking about getting one.
I don't know what to say to this.. I suggested he look into it more because it wasn't like his peg tube...get it and forget it other than a flush or feed.
So I wonder, how many of your pals have changed their mind?
After travelling and doing many fun family things this last 16 months since he was diagnosed, now he is thinking about a trache. This discussion started today because my 13 yr old asked if Steve was getting one. I said dad had said no to it. He was relieved. I was relaying this to Steve when he said well, I have been thinking about getting one.
I don't know what to say to this.. I suggested he look into it more because it wasn't like his peg tube...get it and forget it other than a flush or feed.
So I wonder, how many of your pals have changed their mind?