- Joined
- Jul 25, 2015
- Messages
- 1,606
- Reason
- CALS
- Diagnosis
- 07/2015
- Country
- US
- State
- tx
- City
- Dallas
First all I would like to thank everyone on this forum. You are all trying to help cope with this terrible disease. My husband was diagnosed last week and we are both terrified. We don't have family to help us through this ordeal. I have herniated disks and cannot lift him when the time comes. I am also the breadwinner and carry his insurance. He had to quit his job last week as he has fell several times and work from his job in cabinet installation so no benefits from his job.
He is very worried about how I will take care of him and if insurance will cover full time care. I have to continue to work so we do not lose insurance and our home. My mother also lives with us and my husband helps me with her.
I came home last night and he was on the computer searching drug overdoses. I was very upset and he said he did not want me to lose the house and injure myself when he is going to die anyways and it would all be for nothing.
If anyone can let us know how to cope with this disease, has information on how much help is covered by insurance, how long it takes to get on disability, how hard it is to set up the home and how we can get help I would appreciate it. I want to give him hope and rest both our minds. He goes to the ALS Neurologist at Texas Neurology in Dallas on Monday. He already has weakness in three limbs, walking very badly and having problems with both hands so afraid he is advancing rapidly. This scares us because we have very little time to prepare. Hope is needed and we need help!
He is very worried about how I will take care of him and if insurance will cover full time care. I have to continue to work so we do not lose insurance and our home. My mother also lives with us and my husband helps me with her.
I came home last night and he was on the computer searching drug overdoses. I was very upset and he said he did not want me to lose the house and injure myself when he is going to die anyways and it would all be for nothing.
If anyone can let us know how to cope with this disease, has information on how much help is covered by insurance, how long it takes to get on disability, how hard it is to set up the home and how we can get help I would appreciate it. I want to give him hope and rest both our minds. He goes to the ALS Neurologist at Texas Neurology in Dallas on Monday. He already has weakness in three limbs, walking very badly and having problems with both hands so afraid he is advancing rapidly. This scares us because we have very little time to prepare. Hope is needed and we need help!