Amandagall5
Active member
- Joined
- May 9, 2015
- Messages
- 34
- Reason
- Lost a loved one
- Diagnosis
- 12/2012
- Country
- US
- State
- OK
- City
- Midwest city
Hello. My husband was diagnosed with ALS in December 2012. He worked until Feb 2013 when he had to take a medical retirement. Now he is in a wheelchair and about the only movement he has is being able to turn his head a little. He is a veteran and I am his only caregiver. I do get help from Visiting Angels six days a week though. He has declined a feeding tube and although he can still swallow eats very little. He won't use a cpap, trilogy, cough assist or oxygen even though at his last breathing test his lung function was down to 30%. He's not very communicative except when it comes to his immediate needs such as adjusting him in the wheelchair, needing a drink, fixing his hat, scratching his nose etc.. These requests seem to come at least every couple of minutes and although I take care of them for him, I do get frustrated quite often with the frequency of them. Does anyone else feel like this or is it just me?
Thanks.
Thanks.