HeatherFeather
Distinguished member
- Joined
- Nov 30, 2014
- Messages
- 284
- Reason
- CALS
- Diagnosis
- 10/2014
- Country
- CA
- State
- Quebec
- City
- Tiny town w/no stoplight!
Hi to all...
It's been awhile since I've been back on this forum. Ron has deteriorated so very very fast and I don't think he has much time left - maybe a month or so - his neurologist agrees
We have a HUGE problem now. Ron has no movement in his hands or legs (or head). He wears the BiPap at night (full mask) and cannot call out to me to adjust it or his feet, or give him water or whatever so we had an alarm sensor where he could move his hand very slightly to set it off. I clipped it to one of his arm/hand supports that he uses to keep his fingers from curling. And then he used his other arm, which is also in a support, to just slightly move it to set off the alarm. Now it takes about half an hour to set it up and it barely works as his movement is next to nil. What can we use to let me know he needs me - any ideas out there? I'm at my wits end trying to find something online!
Thanks all and have a beautiful day xoxoxo
It's been awhile since I've been back on this forum. Ron has deteriorated so very very fast and I don't think he has much time left - maybe a month or so - his neurologist agrees
We have a HUGE problem now. Ron has no movement in his hands or legs (or head). He wears the BiPap at night (full mask) and cannot call out to me to adjust it or his feet, or give him water or whatever so we had an alarm sensor where he could move his hand very slightly to set it off. I clipped it to one of his arm/hand supports that he uses to keep his fingers from curling. And then he used his other arm, which is also in a support, to just slightly move it to set off the alarm. Now it takes about half an hour to set it up and it barely works as his movement is next to nil. What can we use to let me know he needs me - any ideas out there? I'm at my wits end trying to find something online!
Thanks all and have a beautiful day xoxoxo