Grumpy'sWife
Distinguished member
- Joined
- Aug 18, 2014
- Messages
- 153
- Reason
- Lost a loved one
- Diagnosis
- 07/2014
- Country
- US
- State
- Ohio
- City
- Southern
Hi everyone. It has been awhile since I have been on but wanted to give you a quick update on my Grumpy. There have been so many changes since the first of December when I was here last. Grumpy (Randy) has only movement on 3 fingers of his right hand now. He is totally reliant on the Trilogy for his breathing. He has been strictly Peg tube fed for about 6 weeks or so. He has lost his neck muscle function as well so has a brace for his neck. After much consideration and communication between us, hospice was called in this week.
He is amazing and has managed too keep his sense of humor and his personality is still the same. I am truly blessed to be his wife.
I will try to check in as things change but I stayed away because well frankly I was angry. Not with anyone here but with this damn disease that takes so much and doesn't care and I didn't think I would be very good company for anyone. So I wrapped myself in my love and made him my only priority. It's been amazing to be with him, to be his rock when for so many years he was mine.
~Kaye
He is amazing and has managed too keep his sense of humor and his personality is still the same. I am truly blessed to be his wife.
I will try to check in as things change but I stayed away because well frankly I was angry. Not with anyone here but with this damn disease that takes so much and doesn't care and I didn't think I would be very good company for anyone. So I wrapped myself in my love and made him my only priority. It's been amazing to be with him, to be his rock when for so many years he was mine.
~Kaye