Barbie
Extremely helpful member
- Joined
- Dec 29, 2007
- Messages
- 2,681
- Reason
- Lost a loved one
- Diagnosis
- 01/2007
- Country
- US
- State
- FL
- City
- orlando
talked with the RT yesterday at the house bout husband's trilogy and what it all means. he said he was doing well on it. she asked me about a trache for him (he was in the shower) and I told her that I didn't know what he would say, but what my stance was on it. it made me get a little teary eyed talking about it with her. Basically--he always said no but now he is saying maybe--but I say that I will not be his caregiver in that event. So I am the bad guy in his scenario--the thing is he won't even say yes to a peg!
Anyway, the RT said that she believes that his breathing will not be what does him in--it will be his weight/nutrition at this point. not that she was an expert, but as weak and thin as he is it is what she has seen.
I know this is a very polarizing issue, but I just can not imagine being completely paralysed and dependent on someone for every single thing--not able to do anything for yourself and being happy also having a machine breathing for you. To me--that sounds horrible. and even more--it sounds horrible caring for someone like that. I cant do it and I won't do it. I need to relax, but this has me all worked up because he wants to leave that option open. It isn't even something we have to deal with right now, but just thinking about it
Anyway, the RT said that she believes that his breathing will not be what does him in--it will be his weight/nutrition at this point. not that she was an expert, but as weak and thin as he is it is what she has seen.
I know this is a very polarizing issue, but I just can not imagine being completely paralysed and dependent on someone for every single thing--not able to do anything for yourself and being happy also having a machine breathing for you. To me--that sounds horrible. and even more--it sounds horrible caring for someone like that. I cant do it and I won't do it. I need to relax, but this has me all worked up because he wants to leave that option open. It isn't even something we have to deal with right now, but just thinking about it