Drewsmom
Active member
- Joined
- Feb 2, 2014
- Messages
- 68
- Reason
- CALS
- Diagnosis
- 07/2015
- Country
- US
- State
- usa
- City
- dixie
So the cervical fusion last week made no impact on my husband's neurological issues. It did however, enable him to be transferred to an inpatient rehab facility. He is on the "ALS" therapist team. They admitted that they have not ever had anyone with PLS before, so they have been doing their research. They are concerned because his progression has been in months, not years. Also he has clinical weakness and fasiculations which are not supposed to be part of ALS. So today they met with me and broke the news of the need for the power wheelchair. He does not need it now, but they wanted to go ahead and get the ball rolling. I took it much harder than I thought I would. I have been seeing the writing on the wall for some time now. But hearing it from other professionals, feels like a punch in the gut.
They also hooked me up with a durable medical company who is going to make a home visit and provide input about our home and access.
What did you do about a lift for the wheelchair? Did you buy a handicapped accessible van, or did you purchase the lift to add on to your vehicle?
So overwhelmed.
They also hooked me up with a durable medical company who is going to make a home visit and provide input about our home and access.
What did you do about a lift for the wheelchair? Did you buy a handicapped accessible van, or did you purchase the lift to add on to your vehicle?
So overwhelmed.