Ronnie& sissy
Active member
- Joined
- Jan 12, 2014
- Messages
- 62
- Reason
- CALS
- Diagnosis
- 09/2012
- Country
- US
- State
- WV
- City
- Cameron
Please forgive me everyone, I've never done this before. So I'm not sure where to start... I guess I should first introduce myself, my name is Karen, but everyone calls me Sissy, my husbands name is Ronnie, and he was diagnosed with ALS in sept. 2012. He is 49, I am 37.
Ok, that's a start... I should also probably tell you that my hubby used to be a bull of a guy, so strong, grew up on a farm, and a pipelines for 31 years. ( to give u an idea, I could not touch my fingers from both hands around his forearms)
Even though it's only been a year and 4 months, things are taking its toll. We do have a caregiver that's comes 8-12, and a niece that comes after that until I get home from work. I too now work in the natural gas industry. (so blessed in that since). Anyway here is where we are now, walking is with a walker and someone behind him, legs braces on, with a cane and someone there, (again because he's stubborn) at the store or anything we do have a scooter. bathroom,shower and shaving, has become me, can't believe he put a razor in my hand! Lol jk Turning in bed is mine, breathing at night is the bi pap, still eating ok, but with in the past month voice going fast! Looking into banking his words. Depression is on the horizon, but I'm doing everything I can think of to keep that from happening. (For the both of us) we live in WV and it was -20 @ the beginning of the week, that's rough! Hope this breaks the ice ok, didn't want to get too deep my first post, because I could truly just start bawling at any givin min. Just nice to finally, maybe get some relieve talking to others in our situation. Look forward to meeting and sharing with you all. And hopefully Ronnie may get some things off his chest as well. Although he doesn't do the internet thing, I read him stuff from here all the time. So thank you for that as we'll, ( just took a little more guts to finally talk about it)
Ok, that's a start... I should also probably tell you that my hubby used to be a bull of a guy, so strong, grew up on a farm, and a pipelines for 31 years. ( to give u an idea, I could not touch my fingers from both hands around his forearms)
Even though it's only been a year and 4 months, things are taking its toll. We do have a caregiver that's comes 8-12, and a niece that comes after that until I get home from work. I too now work in the natural gas industry. (so blessed in that since). Anyway here is where we are now, walking is with a walker and someone behind him, legs braces on, with a cane and someone there, (again because he's stubborn) at the store or anything we do have a scooter. bathroom,shower and shaving, has become me, can't believe he put a razor in my hand! Lol jk Turning in bed is mine, breathing at night is the bi pap, still eating ok, but with in the past month voice going fast! Looking into banking his words. Depression is on the horizon, but I'm doing everything I can think of to keep that from happening. (For the both of us) we live in WV and it was -20 @ the beginning of the week, that's rough! Hope this breaks the ice ok, didn't want to get too deep my first post, because I could truly just start bawling at any givin min. Just nice to finally, maybe get some relieve talking to others in our situation. Look forward to meeting and sharing with you all. And hopefully Ronnie may get some things off his chest as well. Although he doesn't do the internet thing, I read him stuff from here all the time. So thank you for that as we'll, ( just took a little more guts to finally talk about it)