kohl2kool
New member
- Joined
- Sep 2, 2013
- Messages
- 4
- Reason
- Loved one DX
- Country
- US
- State
- Oregon
- City
- Milwaukie
I am new to this forum...my husband Roger was diagnosed wit bulbar onset ALS in May of this year, with symptoms starting in late summer/fall of 2012. His disease is progressing quickly, he has already lost the ability to use both arms and hands, he can barely be understood anymore, and his legs get weaker every day. He chokes constantly, either from swallowing food or his own saliva. We have a huge support system, and I have help with meals, lawn work, housework, and general chores weekly. What I am lacking is support in knowing how to emotionally deal with this. I am so incredibly sad, and I cry daily. The support group in our area is not held when I can attend, and I would just like to chat with people who have been on the journey we are on as well. Any helpful hints, suggestions, and experience would be greatly appreciated. Thanks!