bemindful
Active member
- Joined
- Jun 25, 2013
- Messages
- 61
- Reason
- Loved one DX
- Diagnosis
- 01/2008
- Country
- US
- State
- Missouri
- City
- St. Louis
I am wondering how other CALS have dealt with the FTD with their PALS. My PAL is showing the signs and it is driving us all crazy: "Shift this here, move this here, adjust this slightly to the right.....no, slightly to the left.....get this for me....no, not this one....that one. Don't walk away, don't stand too close. I know what I need, not you and....NO, you cannot sit down or rest because I have ALS and you don't."
She is never appreciative, never satisfied, never completely satiated.
I am becoming burned out. Depressed. I need to do something to care for myself, but I also need to care for my PAL. My PAL is losing support because my few supporters are all exhausted (Me the most. She NEVER wants me to rest and doesn't seem to care). No one feels appreciated and gets so frustrated that I am afraid that I will be last one standing.
FTD is horrid. I read the 'caretaker burnout' published by ALS/MS and I fit it to a tee. I thought maybe I should say NO more. But there comes the guilt and the resentment from my PAL.
I cannot keep this up.
Any suggestions? Is there something that the doctors have recommended? I've read the "have endless patience" responses and the reminders that "she does not realize what she is doing". I'm doing that and I'm exhausted.
She is never appreciative, never satisfied, never completely satiated.
I am becoming burned out. Depressed. I need to do something to care for myself, but I also need to care for my PAL. My PAL is losing support because my few supporters are all exhausted (Me the most. She NEVER wants me to rest and doesn't seem to care). No one feels appreciated and gets so frustrated that I am afraid that I will be last one standing.
FTD is horrid. I read the 'caretaker burnout' published by ALS/MS and I fit it to a tee. I thought maybe I should say NO more. But there comes the guilt and the resentment from my PAL.
I cannot keep this up.
Any suggestions? Is there something that the doctors have recommended? I've read the "have endless patience" responses and the reminders that "she does not realize what she is doing". I'm doing that and I'm exhausted.