JackieMurphy
Member
- Joined
- May 1, 2012
- Messages
- 11
- Reason
- CALS
- Country
- US
- State
- nh
- City
- epping
Hello
This is my first post to this forum. Our Palliative Care nurse suggest I give this a try. I am a 27 year old female who is the primary care giver for my mother in law who has ALS. I left my job in June and have been taking care of her everyday ever since.
My husband works days so he and I take care of her together at night and throughout the night.
Her husband works third shift. . He is home at 7am and goes to bed at 11am until 4 pm. He is then out the door by 430.
So it is mostly myself who does mostly all of the care giving.
At this point she is unable to speak, mobility is limited, most of her problems with ALS are in her neck and throat. She struggles with mucus all day long. She is constantly using a suction machine, constantly chocking, and stops breathing sometimes.
I am on here looking for someone around my age to talk to. I have wonderful friends and family do not get me wrong, however none of my friends know, thank goodness, what it is like to have to be a round the clock care giver, especially since we are young.
Just looking to see if there is anyone out there who is around my age who would like to swap emails and chat from time to time. It would be nice.
Thanks for reading
Jackie
This is my first post to this forum. Our Palliative Care nurse suggest I give this a try. I am a 27 year old female who is the primary care giver for my mother in law who has ALS. I left my job in June and have been taking care of her everyday ever since.
My husband works days so he and I take care of her together at night and throughout the night.
Her husband works third shift. . He is home at 7am and goes to bed at 11am until 4 pm. He is then out the door by 430.
So it is mostly myself who does mostly all of the care giving.
At this point she is unable to speak, mobility is limited, most of her problems with ALS are in her neck and throat. She struggles with mucus all day long. She is constantly using a suction machine, constantly chocking, and stops breathing sometimes.
I am on here looking for someone around my age to talk to. I have wonderful friends and family do not get me wrong, however none of my friends know, thank goodness, what it is like to have to be a round the clock care giver, especially since we are young.
Just looking to see if there is anyone out there who is around my age who would like to swap emails and chat from time to time. It would be nice.
Thanks for reading
Jackie
