Chase_Corin
Distinguished member
- Joined
- Nov 24, 2010
- Messages
- 135
- Reason
- Loved one DX
- Diagnosis
- 11/2010
- Country
- CA
- State
- On
- City
- Perth, Ontario
Well last month when we went to the ALS clinic the doctors thought that dad should have a power wheelchair that tilts him back so his head isn't listing forward.
Well dad dosn't want it because he thinks he will have too hard a time breathing. Because he has a weak diapraham I understand where he is coming from but he won't wear a neck brace or do anything to keep this from becoming a painful issue.
Mom and I have been looking for a wheelchair accessable van because it is getting to be way too much for us to get dad in and out of the car (a kia Rondo) whenever he has an appointment. So after doing some searches I came to him with 2 reasonable vhicles that my cousin the mechanic agreed to look at with me. Well dad says he just won't go to apointments anymore. That the doctors and such can't do anything for him so there is no reason to spend money on somthing he won't use.
So basically he is never going to leave the house after this christmas because that is how long we figure we have until we wont be able to move him around. Mom is frustrated, she can't reason with him. Lately we havn't even been able to go outside to tidy up for winter while dad is having a feeding through his tube because he accidently pulls it out. Then yells at us for an hour about not being able to hear him from outside. Then mom feels she is trapped in the house.
We are getting out once a week for several hours 11-5 normally on a friday but it just dosn't seem to be enough to deal with his pigheadedness. We make plans of what we want to do and dad shoots down all our ideas. Like putting up shelves in the garage to store leftover material from the bathroom reno. If we talk about any of our plans around dad he disagrees with them so mom and I do things without telling him but then I feel we are lying to him by omission.
Ugh! sorry end of rant, I am just frustrated about his lack of flexability.
Well dad dosn't want it because he thinks he will have too hard a time breathing. Because he has a weak diapraham I understand where he is coming from but he won't wear a neck brace or do anything to keep this from becoming a painful issue.
Mom and I have been looking for a wheelchair accessable van because it is getting to be way too much for us to get dad in and out of the car (a kia Rondo) whenever he has an appointment. So after doing some searches I came to him with 2 reasonable vhicles that my cousin the mechanic agreed to look at with me. Well dad says he just won't go to apointments anymore. That the doctors and such can't do anything for him so there is no reason to spend money on somthing he won't use.
So basically he is never going to leave the house after this christmas because that is how long we figure we have until we wont be able to move him around. Mom is frustrated, she can't reason with him. Lately we havn't even been able to go outside to tidy up for winter while dad is having a feeding through his tube because he accidently pulls it out. Then yells at us for an hour about not being able to hear him from outside. Then mom feels she is trapped in the house.
We are getting out once a week for several hours 11-5 normally on a friday but it just dosn't seem to be enough to deal with his pigheadedness. We make plans of what we want to do and dad shoots down all our ideas. Like putting up shelves in the garage to store leftover material from the bathroom reno. If we talk about any of our plans around dad he disagrees with them so mom and I do things without telling him but then I feel we are lying to him by omission.
Ugh! sorry end of rant, I am just frustrated about his lack of flexability.