20 lbs!?

[Barbie]

Ok,

this morning i am p.o.! My DH tells me to buy a manual scale because he is going to gain 20 lbs!

how is this going to happen? he is going to eat more pudding. Lets see...ALS is off the table, a peg is off the table, pureed food takes 45 minutes a meal to get down followed by coughing for an hour. hospice will not let the CNA feed him bc of the choking. I work and not working is off the table. a paid health aide is not possible. others feeding him is not allowed.

daily menu:

oatmeal and fresh fruit (pureed together) with a benecal
coffee
juice
water
more coffee
dinner--what ever i cook, pureed. but, less than what i eat and always not all eaten. always from scratch, always well balanced because that is what I do.
water
ensure plus
pudding


I am just venting--he is impossible!

 

[brooksea]

I feel for ya. All I can say is good luck and ALS sucks! (You are doing the best you can!)

 

[kiwisally]

So sorry it has to be all the more difficult Barbie.

 

[Katie C]

I'm sorry Barbie.

 

[cervus]

I feel for you too, Barbie.

 

[pscheffel]

That is very difficult, so very sorry.

 

[panguinjen]

Barbie,
I'm so sorry... Sending hugs your way...

Jen

 

[momofsixkids60]

Barbie, I'm sorry. Sending you hugs.

 

[notme]

Hugs Barbie

It ate ,y post. You need two more of you!

He won't do the PEG, huh?

What about those protein powders weight builders use?

 

[AzBabs]

I'm so sorry, I am a recently diagnosed PAL and have already decided to get a PEG when the time comes. I am reading all of the CAL posts I can to know what NOT to do and DO to make it easier on my Dear Hubby (CAL). I'm a RN and am sure that helps me evaluate my future medical needs. Please keep posting, your posts are so insightful! Try to take care of yourself too.