nsmith555
Active member
- Joined
- Feb 27, 2007
- Messages
- 67
- Reason
- Loved one DX
- Diagnosis
- 03/2007
- Country
- US
- State
- OK
- City
- Guthrie
Hello.
I found this site a few weeks ago when I first started searching the internet for ALS as it looks like my mother has it - very possibly the bulbar form - altho a definite diagnosis has not been made.
I attended her 1st neuro visit with her and my dad two weeks ago. She started showing symptoms as early as Dec 2005 but her voice started "going" in Feb 2006. The doc wanted to rule out myasthenia gravis and B12 deficiency before settling along the lines of ALS. The blood tests for those came back today as negative. It was pretty apparent to me at the appt 2 weeks ago that he was leaning towards ALS, altho I know my folks were hanging on the hope of one of the other two possibilities.
So, that's what brings me here. I don't even know exactly how to describe what emotions I am feeling as they are so all over the place. I hope I can get some help with others who are in my spot. I will appreciate anything anyone wants to share with me at this stage of the "game".
Thanks...
I found this site a few weeks ago when I first started searching the internet for ALS as it looks like my mother has it - very possibly the bulbar form - altho a definite diagnosis has not been made.
I attended her 1st neuro visit with her and my dad two weeks ago. She started showing symptoms as early as Dec 2005 but her voice started "going" in Feb 2006. The doc wanted to rule out myasthenia gravis and B12 deficiency before settling along the lines of ALS. The blood tests for those came back today as negative. It was pretty apparent to me at the appt 2 weeks ago that he was leaning towards ALS, altho I know my folks were hanging on the hope of one of the other two possibilities.
So, that's what brings me here. I don't even know exactly how to describe what emotions I am feeling as they are so all over the place. I hope I can get some help with others who are in my spot. I will appreciate anything anyone wants to share with me at this stage of the "game".
Thanks...