Following a bit of a meltdown last week our hospice have kindly offered to take us both in. We are now on the waiting list for a 2 week "holiday".
They have a particular room where both patient and spouse/carer can stay. We are lucky that our hospice have a lot of experience with ALS (particularly high incidence of it in our area) and their senior staffing nurse has spent the last 6 months in full training and been visiting patients in the community to aid her ability to understand.
The plan is initially to stop me having to get up every 2 hours during the night, hoping that a few good nights uninterrupted sleep will help recharge my batteries. They would like to cook for me and for me to have treatments ie. massage, reflexology, hair, nails etc.
They would also like me to have a break from hoisting - my back is soo sore.
For Mark - different faces (not my grumpy one), physio, treatments, medication review and hopefully fresh air - the gardens are amazing and the room has like a glass door system that opens the whole side of the room out on to the garden.
I feel guilty - because i just cant wait, and poor Mark is anxious about the change.
I think we are very lucky to be offered this option - so this feels like good news