lakemarlene
New member
- Joined
- Jul 1, 2012
- Messages
- 5
- Reason
- Loved one DX
- Country
- US
- State
- CA
- City
- Westwood
New to the ALS world with my sister being diagnosed 5/2012. She is undergoing treatment called the PK Protocol (named after the researcher Patricia Kane). Has anyone out there had any experience with this protocol? Sister previously had Lyme in 2009 and when these symptoms began last fall Drs. thought is was recurring Lyme and she started on iv antibiotics. Followed with a few other alternative therapies that she has done for the past 30 years but symptoms kept progressing. Her Dr. recommended PK protocol and although symptoms have advanced, treatments can take a while to take effect. Does anyone have feedback on this? Thanks.